Genetic Support Network of Victoria - Genetic Support Group Database

Genetic Support Group Database

Community Partner: Genetic Support Network of Victoria 

Research Team: Dr Jennifer Beckett, Media and Communications

Project Summary: The Genetic Support Network of Victoria provides education, advocacy and support to people with genetic conditions and those who support them. This project will evaluate the usefulness of a database of support groups for those with rare and genetic conditions and explore ways to expand and improve support.