Extending telehealth and remote family well-being support for children with Neurodevelopmental Disability
Lead researchers: Kate Milner and David Amor
Department of Paediatrics & Royal Children’s Hospital
Team members: Dinah Reddihough, Christine Imms, Gordon Baikie, Kate Milner, Ingrid Sutherland, Alice Morgan, Sevastine Katsakis, Joan Gains
Partner organisations: Royal Children’s Hospital, CanChild Centre for Childhood Disability Research in Canada, Australian Catholic University
Without targeted service provision, children with developmental disabilities and their families may be disproportionately adversely affected by direct and indirect effects of the COVID-19 pandemic. This project aims to mitigate the adverse effects of the pandemic on high-risk children with complex developmental disabilities at Royal Children’s Hospital (RCH) Department of Neurodevelopment & Disability (NDD) and embed longer-term implementation where benefits are demonstrated. We will use participatory implementation research methods to develop, implement and evaluate a system of tele-health and remote support, adapting service provision to the changing needs of children and families throughout the pandemic.