Working together with families to manage their child’s disease: co-designing a physical activity and healthy living management program for children and young people affected by Charcot-Marie-Tooth (CMT) disease

This project brings together young people and families of children with Charot-Marie-Tooth (CMT) disease and healthcare professionals to co-design a therapeutic intervention based on best practice guidelines.  The project team is producing a co-designed Healthy Living Management Program which  includes physical activity, exercise and healthy living goals to increase knowledge and awareness of the impact these factors have on disease and disability in paediatric CMT.

Project lead:

Ms Marlena Klaic, Melbourne School of Health Sciences, Faculty of Medicine, Dentistry and Health Sciences